Autism Society Canada | Société canadienne de l'autisme

Parents of adolescents (12-18 years) with autism and Asperger's: You are invited to complete a 35-40 minute online survey about sexuality education and relationships! Eligible participants will be entered into a drawing to win one of ten $40 pre-paid Visa gift cards, and can sign up to receive lists of resources! Participate in the Online Survey. For questions: Email Laura Graham at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  or call (801)-585-7114.

 

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Plugged In: Electronics use in children, youth, and young adults with Autism Spectrum Disorder | We are researchers who want to understand the benefits and the problems of electronics use for children, youth, and young adults with an Autism Spectrum Disorder (ASD). We are asking parents of children with an ASD to complete a survey about their child's electronics use. If your child is younger than 26, please fill out the survey (approximately 20 minutes long). If you have any questions about the survey please This e-mail address is being protected from spambots. You need JavaScript enabled to view it . 

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Parents of Children between the Ages of 5-12 Diagnosed with ASD needed to participate in an online study at Queen's University.  The Levels study will require you to complete questionnaires about your child's behaviours and emotional responses. The study is being conducted by Dr. Elizabeth Kelley's lab at Queen's University. The study is completely confidential and non-invasive. To participate, go to tinyurl.com/QueensASDstudy and enter the password asdstudy.

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A Survey on Quality of Life, Self-Efficacy, and Social Relationships | California State University, Dominguez Hills. As part of the second half of an award winning research project exploring how adults with autism experience romantic relationships, we are now collecting data about how their life experiences and sense of self-efficacy affect their quality of life. Participate in the online survey. If you have any questions about this study or your rights as a participant, you may call the investigator Marianne Lacoste at 310-936-2326, or the Institutional Review Board for the Protection of Human Subjects at CSUDH, 310-243-3756.

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Does your child have a diagnosis of Autism Spectrum Disorder (ASD, Autism, Asperger’s, PDD-NOS), or Intellectual Disability (ID, DD)? The POND-Network of the Holland Bloorview Kids Rehab Hospital is currently conducting new research studies across Ontario to understand how genes and biology affect the brain and behaviour in Autism and other Neurodevelopmental Disorders. We need your help! To learn more about the project and to participate, contact Naomi Sklar at Holland Bloorview: 416.425.6220 x6321 |  This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

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 SickKids: Children and Teens with Autism Spectrum Disorders Needed for Research Study. A team of researchers is seeking children and teens with Autism Spectrum Disorders who have recently been hospitalized at the Hospital for Sick Children. We want to hear about their experiences of hospital care, as well as the experiences of their parents and health-care providers. [View Details PDF]

 

I am pleased to announce the launch of Adults Count! A survey on Youth and Adults with ASDs in Ontario.

Individuals express their interest in the survey by emailing us at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it . All surveys can be completed on-line unless a paper version is requested. The information gathered will be used to understand the needs of adults living with Autism Spectrum Disorders in Ontario. The survey can be completed by:

(1) An individual 16 years old or older who has been diagnosed with an Autism Spectrum Disorder by a professional; OR

(2) A family member (e.g., sibling, parent) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder; OR

(3) A professional (e.g., group home worker, Adult Protective Service Worker, therapist) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder.

– Kevin Stoddart, The Redpath Centre for Social and Emotional Development

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David Daglish, a PhD candidate at the DeGroote School of Business, McMaster University, is conducting an online survey measuring people's trust in the computerisation of their health records. The survey is anonymous and takes approximately twenty minutes to complete. Participate in the online survey.

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The Autism Spectrum Disorders – Canadian-American Research Consortium (ASD-CARC), run from Queen's University in Kingston, Ontario, is a multi-disciplinary team of more than 70 researchers and clinicians working with over 3000 families in Canada and internationally who are dedicated to understanding the Autism Spectrum. Advances in knowledge about ASDs will ensure earlier treatment and brighter futures for individuals on the spectrum and their families. Participation in our research is very simple and convenient for all of the families involved – all components of our studies can be done from home and are not time consuming. To register your family and join our research initiative, please visit our website at www.autismresearch.ca, call us at our toll-free number 1-866-273-2272 or email us at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it . Participation in our research is simple…we’ll bring the research to you!

Children's Hospital Boston is recruiting children and adults with an autism spectrum disorder diagnosis. This study is working towards gaining a better understanding of the genetic and environmental factors involved in autism spectrum disorders (ASD), which includes autism, pervasive developmental disorder (PDD), and Asperger's syndrome. The investigators hope that information gained from this study will lead to new ways of diagnosing and treating ASDs earlier and more efficiently. Participation takes less than 2 hours to complete and travel Boston is not required. Medical and family history information is collected over the telephone and a blood or saliva sample is collected by the mail. The blood draw can be performed by a participant's physician. There is no cost to participate. For more information please contact Caitlin Kreitman @ 866-982-5827 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Research Study examining how individuals with AS are diagnosed. We are looking for individuals who have been diagnosed with: Asperger Syndrome, or High Functioning Autism, or Attention Deficit/Hyperactivity Disorder (preference provided to those who have only one of those diagnosis). We are also looking for individuals who do not have a diagnosis of any kind to participate in our research. We are especially interested in recruiting adult males. The purpose of this study is to determine the accuracy and usefulness of current screening/diagnostic instruments for adults with Asperger Syndrome (AS). We seek to understand how (or if) these instruments discriminate between individuals with no diagnoses and individuals with different diagnoses. Each participant will be asked to complete several tasks (questionnaires and activities to provide insight into about your feelings, skills, and abilities) and upon completion of the study, you will receive up to $50 (i.e., $25 for each of two 3-hour sessions) for participating in this research.  Participants from Ontario, Manitoba and Saskatchewan are being recruited for this study. If you are interested in participating in this research project, please contact Dr. Montgomery by emailing This e-mail address is being protected from spambots. You need JavaScript enabled to view it or calling 474-9629.

The ASD Studies Lab at Queen’s University is recruiting caregivers of children aged 3-12 with a current ASD diagnosis to complete a short online study investigating the nature of savant skills, restricted interests and repetitive behaviours in children with ASD. The survey involves completing a series of questionnaires based on your child’s behaviours and should take no longer than 30 minutes to complete. Should you have any questions, the researchers' contact information is posted throughout the survey. The study can be accessed at: www.surveymonkey.com/savant

Parent Autism Safety Survey: Injuries are the leading cause of death and disability in children. Children with autism have significantly higher rates of injury, emergency room visits, and hospital admissions than do typical children. Please take the time to complete the Autism Safety Survey, designed to collect information regarding parent opinions and concerns, injury prevalence and details. Thank you for contributing to making the lives of children with autism safe. Jack Scott & Toby Honsberger - Florida Atlantic University www.surveymonkey.com/autismsafety.

Pragmatic (Conversational) Behaviour in Adolescents with HFA or AS: A Cross-Linguistic Analysis. Researchers at the University of Toronto are recruiting English and French-speaking adolescents (13-15 years-old) with high-functioning autism or Asperger Syndrome to participate in a brief study pertaining to conversational/social skills. The primary goal of this research is to examine differences in pragmatic (conversational) behaviour between English and French-speaking children with HFA or AS in order to investigate the impact that language has on pragmatic behaviour/impairment. The study includes participation in two sessions of spontaneous speech elicitation task (each session takes approximately 45 minutes to complete) and two pragmatic tasks (each task takes approximately 1 hour to complete). For their time and effort, all participants will be provided with an honorarium of $40. If you are interested and want to find out more, please contact Marina at: (647) 309-8415 |  This e-mail address is being protected from spambots. You need JavaScript enabled to view it